I talked last week with Shawn Carney with the State Department of Health. I asked him about living with HIV/AIDS in Indiana, given the UN's call for universal, global access to treatment by 2010. "How are we doing here in Indiana?" I asked him.
The short answer is: not too bad, but it's at a significant price.
There are about 9500 people living with HIV/AIDS in Indiana, and the Department of Health makes treatment available to many of them without direct cost. That's significant, because although the prevalence of HIV/AIDS in Indiana is nothing like it is in South Africa...the cost of treatment is quite high.
For the drugs alone, without medical insurance, Carney estimates a Hoosier living with AIDS would have to spend $18,000 out of pocket each year. That's not including lab-tests, monitoring, special care for other, related health issues.
In raw cost, not taking either insurance OR bulk-purchase discounts the state may get into account, $18,000 a year for 9500 people...means $171,000,000. Now, not all those 9500 people are using state assistance to get treatment. The HIV/STD division of the DoH's budget is only about $20,000,000. Still, it's a staggering amount of money.
Monday, February 15, 2010
Monday, January 11, 2010
Where are we now?
I was looking for a new angle on the story of HIV/AIDS work both here in Indiana and also in South Africa, and I came across an interesting fact.
In 2001, the United Nations made a declaration of commitment to working together on the problem of HIV/AIDS around the world. This commitment called for all nations of the world to work together and bring all their resources to bear to provide "universal access" to HIV prevention and treatment...and eventually to halt and reverse the global AIDS epidemic.
They had target dates, and two years ago in 2008 the UN reaffirmed its commitment to the projects and the timeline they had created.
The target date for universal access was 2010.
The target for reversing the epidemic is 2015.
I'll be seeking interviews with representatives from the Indiana State Department of Health, as well as the Indiana AIDS fund, to see how things are going for universal access here at home. I'll also talk with someone from Loving South Africa and perhaps a partner of theirs in Kwazulu Natal about how progress toward universal access is looking there. I'm curious what I'll find. Perhaps universal access in Indiana is accomplished and well-funded--perhaps not. Everything I've heard from Kwazulu Natal's poorest areas is that access is by no means universal, but I've not gotten hard figures.
The World Health Organization also recently posted some data about progress being made in some regions of the world toward slowing and reversing the progress of AIDS...but if memory serves, the data for sub-Saharan Africa was not nearly so positive. Still, they are some hard figures to consider.
In other news, I am pleased to say I have now TWO sponsors for the trip, and I haven't yet sent out any overt pleas for support. Thank you very much to J & C, as well as H & J. I appreciate your trust and support very much.
Thanks for reading,
Marcus
In 2001, the United Nations made a declaration of commitment to working together on the problem of HIV/AIDS around the world. This commitment called for all nations of the world to work together and bring all their resources to bear to provide "universal access" to HIV prevention and treatment...and eventually to halt and reverse the global AIDS epidemic.
They had target dates, and two years ago in 2008 the UN reaffirmed its commitment to the projects and the timeline they had created.
The target date for universal access was 2010.
The target for reversing the epidemic is 2015.
I'll be seeking interviews with representatives from the Indiana State Department of Health, as well as the Indiana AIDS fund, to see how things are going for universal access here at home. I'll also talk with someone from Loving South Africa and perhaps a partner of theirs in Kwazulu Natal about how progress toward universal access is looking there. I'm curious what I'll find. Perhaps universal access in Indiana is accomplished and well-funded--perhaps not. Everything I've heard from Kwazulu Natal's poorest areas is that access is by no means universal, but I've not gotten hard figures.
The World Health Organization also recently posted some data about progress being made in some regions of the world toward slowing and reversing the progress of AIDS...but if memory serves, the data for sub-Saharan Africa was not nearly so positive. Still, they are some hard figures to consider.
In other news, I am pleased to say I have now TWO sponsors for the trip, and I haven't yet sent out any overt pleas for support. Thank you very much to J & C, as well as H & J. I appreciate your trust and support very much.
Thanks for reading,
Marcus
Monday, January 4, 2010
Time to start in earnest
It's only 3 and a half months until we're scheduled to leave on the trip, and there's a lot to do. My first preview story went well, I think, although it was difficult to decide in which direction to take the story. It could've looked and sounded a lot different, and been more about the specifics of Vusi's work, or what LSA does with and for their partners...but in the end I chose to be more general. By the end of the day today, I expect the first feature to be posted to the IPR website: bsu.edu/ipr on the front page.
I'd like to do at least one more story prior to the trip, perhaps with Geoff Wybrow, LSA's founder and a native of South Africa. He's passionate and straightforward; he takes the AIDS epidemic personally, and he gets animated when he talks about what is or isn't being done, and why. And then you start asking yourself, "What am I doing?" Or more accurately for most of us, "What am I NOT doing?"
The worst question you ask yourself, though, is "Why?" I make 'pitches' for support for public radio as a part of my job. I remind people that, as a rule, we will make time and find money for the things that are important to us. Where is our treasure? That's where our heart is.
So, where's my treasure? Not a pleasant question when you consider what impact a small amount of money or time can have in a place as desperate as Kwazulu Natal, where poverty, unemployment, crime, and HIV/AIDS loom so large.
So what do I need to do to get ready for this trip? I need to buy my recording gear. I'll be taking three small field units (in case one or more get stolen--a distinct possibility), and I've never worked with them before. The time to learn how to use them is BEFORE I get on the plane. Then, given the recent failed attempt to destroy an airplane in midflight and current levels of panic over airport security, I wonder how best to ensure I can indeed take my gear with me! It's compact, electronic, and unfamiliar. A few calls to the TSA are in order.
I also need to start getting my immunizations scheduled. I'll talk to my physician about that later this month. Fundraising begins soon, too, to pay for the trip. Thankfully, I'm already started, thanks to a generous couple who heard the first feature--thanks for the encouragement, H and J! [I'd mention their names, but I haven't asked their permission.] There's a long way to go to raise all the funds, though.
There's also LSA's own training/orientation meetings that will help get the group ready for what we'll see.
And most importantly, I'm expecting to come back from this trip a changed man. It will probably mean changes for my family as well. I don't know what those will look like, but my wife and I have already talked and...whatever comes of this trip, we'll embrace those changes together, unified. I am a truly blessed husband.
Thanks for reading,
Marcus
I'd like to do at least one more story prior to the trip, perhaps with Geoff Wybrow, LSA's founder and a native of South Africa. He's passionate and straightforward; he takes the AIDS epidemic personally, and he gets animated when he talks about what is or isn't being done, and why. And then you start asking yourself, "What am I doing?" Or more accurately for most of us, "What am I NOT doing?"
The worst question you ask yourself, though, is "Why?" I make 'pitches' for support for public radio as a part of my job. I remind people that, as a rule, we will make time and find money for the things that are important to us. Where is our treasure? That's where our heart is.
So, where's my treasure? Not a pleasant question when you consider what impact a small amount of money or time can have in a place as desperate as Kwazulu Natal, where poverty, unemployment, crime, and HIV/AIDS loom so large.
So what do I need to do to get ready for this trip? I need to buy my recording gear. I'll be taking three small field units (in case one or more get stolen--a distinct possibility), and I've never worked with them before. The time to learn how to use them is BEFORE I get on the plane. Then, given the recent failed attempt to destroy an airplane in midflight and current levels of panic over airport security, I wonder how best to ensure I can indeed take my gear with me! It's compact, electronic, and unfamiliar. A few calls to the TSA are in order.
I also need to start getting my immunizations scheduled. I'll talk to my physician about that later this month. Fundraising begins soon, too, to pay for the trip. Thankfully, I'm already started, thanks to a generous couple who heard the first feature--thanks for the encouragement, H and J! [I'd mention their names, but I haven't asked their permission.] There's a long way to go to raise all the funds, though.
There's also LSA's own training/orientation meetings that will help get the group ready for what we'll see.
And most importantly, I'm expecting to come back from this trip a changed man. It will probably mean changes for my family as well. I don't know what those will look like, but my wife and I have already talked and...whatever comes of this trip, we'll embrace those changes together, unified. I am a truly blessed husband.
Thanks for reading,
Marcus
Monday, December 21, 2009
Preview Feature
During this past week I talked with two people whose lives have been changed and who are now fighting the AIDS epidemic: Vusi Kweyama, and Roxanne Crosby.
Vusi was a gangster in Kwazulu Natal, but through a program called World Changers Academy, he turned his life around. Now he runs Light Providers, a group that tries to help young people in KZN understand that their lives, each one of them, have a purpose, have meaning. And that they are valuable. This is the kind of character development that's crucial to stemming the tide of AIDS in sub-Saharan Africa. If you're no longer living just for the moment, if you believe that your behavior is important and that you have unique, valuable gifts...then you make different decisions, with different goals. One of the things that Vusi said really stuck with me: "Someone may have skills that transfer to others; we teach skills that transform others."
Roxanne was a corporate executive, making well over $200,000 a year for Steak n Shake, but she turned her life around, too. She's working under a 20-year contract for Loving South Africa, utilizing her executive level skills and gifts...for less than a tenth of her former pay. She says she and the LSA team are focused not on getting ahead in the game of life, but getting others IN the game fighting AIDS. She says their motto is, "...and AIDS." That is, Whatever work you're doing for your fellow man, whatever volunteering, serving, giving, whathaveyou, that's great. Keep doing that. But also make yourself part of the solution to the AIDS epidemic. It's tempting to start counting the dollar- or time-cost that that might demand...but when the person on the other end of the phone has already walked away from a $200,000+ job to make a fraction of what I make now...well, it'd be hard to look at myself in the mirror.
I'm hopeful that the story will be ready for broadcast tomorrow, in its feature form (about 4 1/2 minutes) at least. I'll also work on a two short 'wraps' (stories with reporter or host reading a paragraph, then playing a sound-byte from someone else, then reporter/host reads some more--'wrapping' around the sound-byte) for sharing statewide--just in case other stations don't have room for a big, ole 5 minute feature!
Thanks for reading,
Marcus
Vusi was a gangster in Kwazulu Natal, but through a program called World Changers Academy, he turned his life around. Now he runs Light Providers, a group that tries to help young people in KZN understand that their lives, each one of them, have a purpose, have meaning. And that they are valuable. This is the kind of character development that's crucial to stemming the tide of AIDS in sub-Saharan Africa. If you're no longer living just for the moment, if you believe that your behavior is important and that you have unique, valuable gifts...then you make different decisions, with different goals. One of the things that Vusi said really stuck with me: "Someone may have skills that transfer to others; we teach skills that transform others."
Roxanne was a corporate executive, making well over $200,000 a year for Steak n Shake, but she turned her life around, too. She's working under a 20-year contract for Loving South Africa, utilizing her executive level skills and gifts...for less than a tenth of her former pay. She says she and the LSA team are focused not on getting ahead in the game of life, but getting others IN the game fighting AIDS. She says their motto is, "...and AIDS." That is, Whatever work you're doing for your fellow man, whatever volunteering, serving, giving, whathaveyou, that's great. Keep doing that. But also make yourself part of the solution to the AIDS epidemic. It's tempting to start counting the dollar- or time-cost that that might demand...but when the person on the other end of the phone has already walked away from a $200,000+ job to make a fraction of what I make now...well, it'd be hard to look at myself in the mirror.
I'm hopeful that the story will be ready for broadcast tomorrow, in its feature form (about 4 1/2 minutes) at least. I'll also work on a two short 'wraps' (stories with reporter or host reading a paragraph, then playing a sound-byte from someone else, then reporter/host reads some more--'wrapping' around the sound-byte) for sharing statewide--just in case other stations don't have room for a big, ole 5 minute feature!
Thanks for reading,
Marcus
Monday, December 14, 2009
Genesis of a Story
My wife recently took a week-long trip to Mexico. After the team got back, they held a party to share pictures, look at a slideshow, and talk about their trip. Spouses and families were invited, so I went along.
It so happened that one of the other team-members brought her son, Jay Kirkpatrick, and at one point, the host of the party invited Jay to talk about his own recent trip abroad.
Jay works with a group called Loving South Africa, and as he talked about what his group does, and why...I realized this would be a great story for IPR, an important story, and that I wanted to DO that story.
LSA seeks to bring people, companies, groups, and churches around Indianapolis...into direct contact with people who are fighting at the front lines of the AIDS epidemic: South Africa.
The statistics shocked me. You can find them for yourself at the WHO's website. Of the approximately 2 million deaths worldwide due to AIDS in 2008--1.4 million were in sub-Saharan Africa. 3,800 people dead, every day. One person dying every 25 seconds.
Jay said Loving South Africa's goal is to show people from central Indiana that these are not 1.4 million statistics dying; they are people. They are daughters, fathers, brothers, mothers. A whole generation of men and women is dying off in Kwazulu Natal, South Africa, and practically nobody knows.
And IF THEY HAD THE RESOURCES, NOT ALL THESE PEOPLE WOULD HAVE TO DIE. With the right care, with the right drugs, with the money, things can be changed. They are being changed, in small ways and with important results...but more work is needed. More resources.
So LSA takes small groups of leaders from central Indiana, to show them the human toll that AIDS is taking in Kwazulu Natal, South Africa, to show them the lives that are being lost...and the lives that have been saved. Two weeks of face to face confrontation with the need, and the opportunity. You visit the mass graves. You hold a dying child in your hands. LSA says, in effect, "Here's the problem. Here's what it's doing to these people. And here are the people who are fighting it. Here's their work and its effects. Here's what they are doing, and here's what they need to do it better. Now, are you interested in helping? Or will you go back home and try to forget what you have seen?"
Like I said, it sounds like an important story to me. One I bet most of us in Central Indiana haven't heard before. So I'm going on the next trip. I want to tell the story of what we, here in this part of the world, can do for those who are suffering so greatly.
Mind you, I am afraid. I dread holding a dying child. My wife and I lost a child to miscarriage this past January, and I held my dead son in my hands. I don't know if I can do that again. I am scared to see the face of AIDS, and scared to think what changes I may need to make in my own life, making room in my finances, energy, and time to help others who are suffering, while my family and I live so easily. I do not want to see the need--so I probably need to go (if that makes sense).
I'm going to work on a story this week to preview the trip, and tell the story about LSA's partners' work in Indiana and South Africa. The public radio stations in Indiana have a great relationship when it comes to sharing news and stories, and I expect both this preview and the eventual series I produce upon my return to be picked-up statewide, reaching thousands and thousands of people.
I'm also trying to raise money for the trip. It's been a tight year at IPR, and I don't want to abuse my position as General Manager by 'okaying' an expensive project that I'm personally excited about, when I've had to say 'no' to other requests within the station, rescinding memberships to organizations and chambers of commerce. Overall, the trip will cost about $3,000, including airfare. About $900 of that would purchase equipment that would default to station use upon my return, so I think that portion is legitimate for station funding. The rest of it I want to find outside of normal station revenue. If you're interested in helping bring this story to the public radio audience all around Indiana, drop me an email at mjackman@bsu.edu, or call 765-760-5888.
Please check back in for updates as I get ready for the trip this coming Spring! Thanks for reading,
Marcus
It so happened that one of the other team-members brought her son, Jay Kirkpatrick, and at one point, the host of the party invited Jay to talk about his own recent trip abroad.
Jay works with a group called Loving South Africa, and as he talked about what his group does, and why...I realized this would be a great story for IPR, an important story, and that I wanted to DO that story.
LSA seeks to bring people, companies, groups, and churches around Indianapolis...into direct contact with people who are fighting at the front lines of the AIDS epidemic: South Africa.
The statistics shocked me. You can find them for yourself at the WHO's website. Of the approximately 2 million deaths worldwide due to AIDS in 2008--1.4 million were in sub-Saharan Africa. 3,800 people dead, every day. One person dying every 25 seconds.
Jay said Loving South Africa's goal is to show people from central Indiana that these are not 1.4 million statistics dying; they are people. They are daughters, fathers, brothers, mothers. A whole generation of men and women is dying off in Kwazulu Natal, South Africa, and practically nobody knows.
And IF THEY HAD THE RESOURCES, NOT ALL THESE PEOPLE WOULD HAVE TO DIE. With the right care, with the right drugs, with the money, things can be changed. They are being changed, in small ways and with important results...but more work is needed. More resources.
So LSA takes small groups of leaders from central Indiana, to show them the human toll that AIDS is taking in Kwazulu Natal, South Africa, to show them the lives that are being lost...and the lives that have been saved. Two weeks of face to face confrontation with the need, and the opportunity. You visit the mass graves. You hold a dying child in your hands. LSA says, in effect, "Here's the problem. Here's what it's doing to these people. And here are the people who are fighting it. Here's their work and its effects. Here's what they are doing, and here's what they need to do it better. Now, are you interested in helping? Or will you go back home and try to forget what you have seen?"
Like I said, it sounds like an important story to me. One I bet most of us in Central Indiana haven't heard before. So I'm going on the next trip. I want to tell the story of what we, here in this part of the world, can do for those who are suffering so greatly.
Mind you, I am afraid. I dread holding a dying child. My wife and I lost a child to miscarriage this past January, and I held my dead son in my hands. I don't know if I can do that again. I am scared to see the face of AIDS, and scared to think what changes I may need to make in my own life, making room in my finances, energy, and time to help others who are suffering, while my family and I live so easily. I do not want to see the need--so I probably need to go (if that makes sense).
I'm going to work on a story this week to preview the trip, and tell the story about LSA's partners' work in Indiana and South Africa. The public radio stations in Indiana have a great relationship when it comes to sharing news and stories, and I expect both this preview and the eventual series I produce upon my return to be picked-up statewide, reaching thousands and thousands of people.
I'm also trying to raise money for the trip. It's been a tight year at IPR, and I don't want to abuse my position as General Manager by 'okaying' an expensive project that I'm personally excited about, when I've had to say 'no' to other requests within the station, rescinding memberships to organizations and chambers of commerce. Overall, the trip will cost about $3,000, including airfare. About $900 of that would purchase equipment that would default to station use upon my return, so I think that portion is legitimate for station funding. The rest of it I want to find outside of normal station revenue. If you're interested in helping bring this story to the public radio audience all around Indiana, drop me an email at mjackman@bsu.edu, or call 765-760-5888.
Please check back in for updates as I get ready for the trip this coming Spring! Thanks for reading,
Marcus
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